About

I am Kacie, living with level 5 cerebral palsy, which significantly restricts my mobility. My reliance on PEG feeding, along with frequent hospital stays, highlights the urgency of our situation. Despite these challenges, I believe that raising awareness and garnering support can profoundly impact the lives of individuals like myself. Together, we can drive necessary change and create a more inclusive environment for those facing similar hurdles. Your attention and assistance are crucial.

My current living situation has become increasingly unsustainable, and I find myself in urgent need of my own bedroom. At the moment, I am forced to sleep on the floor using a crash mat, which is far from ideal and contributes to my discomfort. The lack of accessible wash facilities further exacerbates this situation, making it even more challenging to maintain personal hygiene and overall well-being. This environment is simply unfit for my needs, and it is clear that an immediate change is essential to improve my quality of life and ensure my well-being moving forward.

I face constant challenges as my occupational therapist removes essential aids, like slings, crucial for my exercise routine. The uncertainty of potentially being wheelchair-bound for life adds to my frustration. Additionally, I've encountered empty assurances regarding suitable beds that would enhance my comfort and care. These ongoing struggles leave me feeling unsupported and desperate for the necessary tools and resources that can significantly impact my quality of life. Urgent action is needed to address these neglects.